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The miracle cure for sickle cell is now 2 years old. Most are still waiting.
The miracle cure for sickle cell is now 2 years old. Most are still waiting.

Despite a Trump administration push, there are few facilities offering the complex treatment in the rural areas where many patients live. Read more

Politico - Dec 28
STAT+: A promising sickle cell pill and a new way to treat myelofibrosis
STAT+: A promising sickle cell pill and a new way to treat myelofibrosis

At ASH 2025, Fulcrum presented promising data on a sickle cell pill and Incyte is pioneering a new way to treat myelofibrosis. Read more

Stat - Dec 07
STAT+: Fulcrum study suggests improved efficacy for higher dose sickle cell pill
STAT+: Fulcrum study suggests improved efficacy for higher dose sickle cell pill

A higher dose of the experimental pill for sickle cell disease showed more promise, Fulcrum said at the American Society of Hematology annual meeting. Read more

Stat - Dec 07
Challenges and opportunities in delivering gene therapies for sickle cell disease and beta thalassemia
Challenges and opportunities in delivering gene therapies for sickle cell disease and beta thalassemia

The first study assessing the real-world commercial roll-out of gene therapies for sickle cell disease and beta thalassemia offers lessons learned to inform best practices as manufacturers and medical centers prepare to meet growing demand for gene therapies in the coming years. Read more

Medical News - Dec 07
New evidence shows hematopoietic cell transplantation offers durable relief for sickle cell disease
New evidence shows hematopoietic cell transplantation offers durable relief for sickle cell disease

Patients who underwent hematopoietic cell transplantation for sickle cell disease saw high rates of survival without disease symptoms and low rates of severe side effects or complications years after their procedure, according to a new study. Read more

Medical News - Dec 07
Most sickle cell patients face long delays for recommended pain relief, study shows
Most sickle cell patients face long delays for recommended pain relief, study shows

A new study finds that only one in three patients visiting emergency departments (EDs) for severe pain associated with sickle cell disease received appropriate opioid-based pain-relieving medications within the first hour as recommended by the American Society of Hematology (ASH) and National Hea... Read more

Medical News - Dec 06
Exa-cel shows complete success in early pediatric trials for sickle cell disease and beta-thalassemia
Exa-cel shows complete success in early pediatric trials for sickle cell disease and beta-thalassemia

Preliminary results from two trials of the gene therapy exagamglogene autotemcel (exa-cel) suggest the therapy offers an effective cure for beta-thalassemia and sickle cell disease in children younger than 12. Read more

Medical News - Dec 06
Study reveals the effectiveness of Painimation in decoding pain for sickle cell patients
Study reveals the effectiveness of Painimation in decoding pain for sickle cell patients

Pain is a constant, complex companion that clinicians often struggle to understand and measure for people living with sickle cell disease. Traditional pain scales reduce this deeply personal experience to a single number that is often inaccurate. Read more

Medical News - Nov 13
Sickle Cell Conquerors of Central Florida raise awareness and support for sickle cell disease
Sickle Cell Conquerors of Central Florida raise awareness and support for sickle cell disease

Central Florida’s Sickle Cell Conquerors hosted their first-ever Sickle Cell Walk at Carver Middle School in Orlando. Read more

Yahoo! News - Sep 14
What is sickle cell disease? Symptoms and treatments
What is sickle cell disease? Symptoms and treatments

Everything you need to know about sickle cell disease Read more

Evening Standard - Sep 03